What’s so special about the Draz kids?
Drew (08-06-03) is special because he has SMA, type I/II. His movement is severely limited, but his zest for life is not. He is brave, sweet and one of the kindest children on the face of the earth.
Ryan (10-21-04) is special because he is the perfect brother/companion for Drew. Drew’s life would be empty without Ry. As the boys say, “Drew does the thinking and Ry does the moving.”
Karli (12-29-08) is special because she was frozen for five months. Karli was created in a laboratory and had one cell removed for testing when she was only an eight-cell embryo. Her papa says she had the same chance of being here as a star in the cosmos.



Thank you for directing me to this website Nana Barb. I hope you don’t mind me calling you that
I love to check out the sites of kids with SMA at about the same age as our son Jojo; it is very inspiring to see older kids with SMA that are thriving. I’ll be visiting often. Praying for a healthy fall/winter/spring for all our kids and caregivers!
I was just checking on you guys. Looks like all is well.