The Draz Fam

First we want to thank each and every person who has sent good wishes, prayed for Drew and been thinking of Drew and his family. Drew came home on Saturday morning. While we are certainly busy, we are doing just fine. Today we began, successfully, to decrease Drew’s pain medication. We also began to develop [...]

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We got the word: we’re going home tomorrow. YIPPEE! Before Drew’s surgery we were warned that recovery would be difficult and that families often say that they would not have gone through with it had they known in advance all that it entailed. I admit that there is a long road ahead of us, but [...]

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Yesterday Drew was doing well enough that we were moved from PICU to a regular room. In fact, we were given the “luxury” room on the floor. The room is very large for a hospital room and, best of all, has a private bathroom. It’s a good thing that we have plenty of room as [...]

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Drew began complaining about his hip several months ago. It was a sharp pain that came when we transferred or repositioned him. Then he began to complain about his knee. Over the weeks, his knee became an almost constant discomfort. Stretching his leg helped momentarily, but soon we heard the refrain, “My knee, my knee.” [...]

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Yesterday a package arrived for the Draz kids. It came from Lizzy and Jeanna and contained some Valentine suckers and some bubbles. Today the children took the bubbles into the bath and had a ball. As I have mentioned before, Drew loves the Animoto videos. He named this video “Valentine Love Bubbles.”
Lizzy and Jeanna, thank [...]

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As the winter drags on, we have settled into a lock-down routine. During the week the boys play together, listen to audio books, work/play on the computer, watch a little TV and take care of routine things like treatments and baths. On weekends we try to add a few special events. Last weekend the cousins [...]

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Drew says, “Flowers are just a little piece of paradise.”
Thank you, Claire, for giving Drew this bit of paradise.
Nana Barb

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Think about the best gift you ever received. It was probably unexpected–that is, something you hadn’t even thought of getting for yourself–and meaningful in a personal way. Today I received just such a gift. The UPS man dropped off a package shortly before Jen arrived home. She opened it and presented me with a lovely [...]

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We’re about midway through the cold/flu season. Ever since we instituted lock-down all of the Draz kids have been healthy! No days in the hospital, no trips to the ER or even any scary nights full of extra treatments for Drew. When we explain lock-down, the response is often that it must get very tedious [...]

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On New Year’s Day the Draz Fam was honored to be visited by another SMA family. Sophia’s family is very similar to the Draz family. Like Drew, Sophia is six. She has a younger sister, close in age to Ryan and a baby sister just a few months younger than Karli. Drew adored Sophia, the [...]

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